cbrunning
01/07/09

33rd seizure yesterday

Link: http://cbrunning.net/wordpress/seizures/

We were just outside the house; I was going out for a walk with the fam at around 10am. Jaya had this seizure in the driveway... lucky it was relatively warm and Quinn and I kept her covered with a couple of blankets. She was ok and we got her up and inside in less than 25 minutes. Usually it is best to ignore the temptation to move her and just make sure that Jaya doesn't get up and stumble into something -- rather than try and move her somewhere and risk injury. I did knock on the neighbor's door though to see if I could get some help carrying her inside. Nobody was home.

It is notable that I felt this seizure coming beforehand and had already mentioned this feeling to Jaya. We were laughing afterwards cuz we were comparing me to one of those trained dogs that some epileptics have around to sense a seizure coming. Actually, many previous seizures I have also sensed something about before they manifest, but I don't often talk much about it; I don't want to be obnoxious, and my intuition hasn't usually been so precise anyway. When I think about it, I have been present for something like 29 of the 33 seizures since we've been together. Seems more than luck. And we're not insane about sticking together every moment of every day... although we have learned a lot about what it means to live with a serious health issue like this, in a situation where no one really cares or helps much. I know that it is grace that has kept us safe and learning from these things.

I'll have to make a new chart for 2009...

33 sounds like such a small number

Here is what happened in 2008: 12 seizures -- they've been more frequent lately:
Jaya's 2008 seizure timeline

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